Where To Start with Dementia Caregiving

Was your loved one recently diagnosed with a form of dementia? 

People with dementia are typically diagnosed in stage four. People in stage four have clear, visible signs of cognitive impairment and exhibit personality changes. 

I’m sure you notice symptoms well before a diagnosis. While doctor intervention can increase resources, validation, and support, the new journey can overwhelm many family caregivers. 

Dementia caregiving can be challenging and emotionally demanding, and all your feelings and concerns are valid.

You do not have to walk alone! 

Here are some tips that may help you in your role as a dementia caregiver:

1. Educate yourself about dementia: Learn as much as you can about dementia, including its symptoms, progression, and available treatments. This knowledge will help you better understand the behavior and needs of the person you care for.
2. Establish a routine: Create a daily routine for the person you are caring for, including regular times for meals, medication, and activities. A routine can help reduce confusion and anxiety and provide a sense of structure and stability.
3. Focus on communication: People with dementia may struggle with communication, so it is important to be patient and use simple, clear language. Avoid using complex sentences or asking too many questions at once. Try to speak in a calm, reassuring tone and maintain eye contact.
4. Be flexible: Dementia can be unpredictable, so be prepared to adapt to changing situations. Be patient and flexible, and try to anticipate the person’s needs as much as possible.
5. Take care of yourself: Caring for someone with dementia can be stressful, so it is essential to take care of yourself too. Make time for self-care activities, such as exercise, hobbies, or spending time with friends and family. Seek out support from other caregivers or professional services if needed.
6. Consider professional help: Depending on the severity of dementia, you may need professional help such as a home care aide, adult day care, or a residential care facility. These options provide additional support and help ease the burden of caregiving.

We’ve also created a short list of six book every dementia caregiver should read:

1. The 36-Hour Day
2. Learning to Speak Alzheimer’s
3. Creating Moments of Joy Along the Alzheimer’s Journey
4. Surviving Alzheimer’s
5. Activities to Do with Your Parent Who Has Alzheimer’s Dementia
6. Chicken Soup for the Soul: Living with Alzheimer’s & Other Dementias

Remember that dementia caregiving can be a challenging but rewarding experience. By caring for yourself and the person you are caring for, you can help improve their quality of life and make the most of your time together.

While dementia progresses at different rates depending on the specific diagnosis and individual, most people living with dementia and their family caregivers require home health care in stage five. At stage five, patients can no longer carry out regular activities of daily living, like dressing or bathing. As a result, it may be time for family caregivers to consider light home health care. When the patient’s needs are too difficult for a caregiver to manage, it’s time for professional help. Home health care allows the patient to remain in the comfort of home while getting the medical care they need and lifting the load for family members. 

Keep an eye out for your physical and mental health in addition to the changes your loved one experiences, as both can reveal signs that it’s time for skilled in-home support.